Book DescriptionOne family's struggle for the past twenty-six years with Neurofibromatosis, and how we have coped with it. Especially how we have dealt with and come to terms with it. Especially how we have dealt with and come to terms with other people's attitudes towards the syndrome and facial disfigurement. In the belief that our own personal experiences may encourage others in similar situations. The author began to write this book with her husband and children ten years ago after a road traffic accident. She trusts that by sharing her own hopes and fears it will help others to understand and hopefully come to terms with their own situations.

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